Stuart Murdock show some support for a CFS/ME org
https://www.instagram.com/p/DIKAZTIJKBl
My mother and a friend in DC both have had it for over a decade, yet doctors and the public know little about it, how to diagnose or treat it. Has gotten a lot of support and funds in the last few years due to its similarities to long covid… unfortunately DOGE has pulled 100s of millions to fund research on it
Stuart also has it
no disrespect here, but how does one know they have this? I think I've had it for a about a decade myself.
none taken, took my mom almost 3 years to get diagnosed
unfortunately, there is no specific test for CFS (or ME Myalgic Encephalomyelitis)
The primary symptom of CFS is significant fatigue that:
Has lasted for at least 6 months
Isn't improved by rest
Can't be explained by other medical conditions
Significantly interferes with daily activities
seek a healthcare provider who is knowledgeable about CFS/ME
The worse part of this disease is no one believes you
then encourage you to exercise more (which typically can make matters worse the next day)
here are some sites
https://solvecfs.org/https://ammes.org/this one is more of an take action site/Instagram that has organized many protests on the mall/congress
https://www.meaction.net/